Research Studies
How do I learn more about current open studies?
Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study.
How do I participate in a study?
Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.
LDN Research Study 6713, "A Natural History of the Gangliosidoses," remains open to enrollment but is funded by mechanisms outside of the RDCRN. Please contact Dr. Jeanine Jarnes (utzx0002@umn.edu) for more information.