Skip to main content

Research Studies

How do I learn more about current open studies?

Below you will find a list of current studies. Clicking on the link will take you to the study summary, which will provide you with all the important details for each study.

How do I participate in a study?

Each study summary provides a list of hospitals or clinics where the study is being run. Using the contact information provided, you may contact any of these facilities in order to request participation in a study.

Showing All Ongoing LDN Studies

LDN Research Study 6713, "A Natural History of the Gangliosidoses," remains open to enrollment but is funded by mechanisms outside of the RDCRN. Please contact Dr. Jeanine Jarnes ( for more information.