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Funding Opportunities

In order to assure the future of rare disease research, training the next generation of early stage investigators is key. Our consortium offers both fellowship and grant funding opportunities.

ADVANCE Sanfilippo Funding Mechanism

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical care, and translational therapeutics which will ultimately improve the lives of children with Sanfilippo syndrome. Scientist-clinician-patient collaborations are highly encouraged and an area of active engagement for the Foundation

Sponsor: The Cure Sanfilippo Foundation

Eligibility Criteria: All funding awards are contingent upon alignment with the goals and priorities of the Foundation and availability of resources.

Letter of Intent Due Date: 2022-08-17

Application Due Date: 2022-08-29

Term: One Year

Fellowship Award Mechanism

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: The Foundation’s aim in supporting trainees is to build a pipeline of talent among early career scientists and clinicians focused on Sanfilippo syndrome from within and outside of the field of lysosomal diseases.

Sponsor: The Cure Sanfilippo Foundation

Eligibility Criteria: All funding awards are contingent upon alignment with the goals and priorities of the Foundation and availability of resources.

Application Due Date: 2022-08-29

Term: Two Years

Pilot Funding Mechanism

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: Cure Sanfilippo Foundation seeks to support research that fills critical gaps in current knowledge across basic science, clinical care, and translational therapeutics which will ultimately improve the lives of children with Sanfilippo syndrome.

Sponsor: The Cure Sanfilippo Foundation

Eligibility Criteria: All funding awards are contingent upon alignment with the goals and priorities of the Foundation and availability of resources.

Letter of Intent Due Date: 2022-08-17

Application Due Date: 2022-08-29

Term: Year 2 funding will be dependent upon progress dem

National MPS Society Pilot Program: Cycle I

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: Seeking applications addressing ML II/III, MPS I, MPS II, MPS III, MPS IVA, or MPS VI, alone or as part of a comparative approach involving other syndromes, as well as physiological systems with commonality between individual MPS and ML disorders.

Sponsor: National MPS Society

Eligibility Criteria: Any individual with the skills, knowledge, and resources necessary to carry out the proposed research as a Principal Investigator (PI) is invited to apply. A PI must be institutionally eligible to apply for, be awarded, and administer an extramural research grant.

Letter of Intent Due Date: 2022-03-15

Application Due Date: 2022-05-15

Term: One - Two Years

National MPS Society Pilot Program: Cycle II

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: Seeking applications addressing ML II/III, MPS I, MPS II, MPS III, MPS IVA, or MPS VI, alone or as part of a comparative approach involving other syndromes, as well as physiological systems with commonality between individual MPS and ML disorders.

Sponsor: National MPS Society

Eligibility Criteria: Any individual with the skills, knowledge, and resources necessary to carry out the proposed research as a Principal Investigator (PI) is invited to apply. A PI must be institutionally eligible to apply for, be awarded, and administer an extramural research grant.

Letter of Intent Due Date: 2022-03-15

Application Due Date: 2022-05-15

Term: One - Two Years

National MPS Society Pilot Program: Cycle III

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: Seeking applications addressing ML II/III, MPS I, MPS II, MPS III, MPS IVA, or MPS VI, alone or as part of a comparative approach involving other syndromes, as well as physiological systems with commonality between individual MPS and ML disorders.

Sponsor: National MPS Society

Eligibility Criteria: Any individual with the skills, knowledge, and resources necessary to carry out the proposed research as a Principal Investigator (PI) is invited to apply. A PI must be institutionally eligible to apply for, be awarded, and administer an extramural research grant.

Letter of Intent Due Date: 2022-03-15

Application Due Date: 2022-05-15

Term: One - Two Years

NTSAD Research Initiative Program: Request for Proposals

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: NTSAD’s Research Initiative Program is soliciting proposals for innovative research projects that involve basic research, translational studies or clinical studies in the following diseases: Tay-Sachs, Canavan, GM1, and Sandhoff diseases.

Sponsor: National Tay-Sachs & Allied Diseases Association (NTSAD)

Eligibility Criteria: Projects that focus on understanding the pathophysiology and the role of inflammation in TaySachs, Canavan, GM1, and Sandhoff diseases, or the process of myelination and how it is affected by disease are of particular interest. Applicants are strongly encouraged to submit proposals for clinical tools that support future trials across the severity spectrum of any given indication. This may include developing severity scales for disease staging, translational biomarkers with clinical utility, or measurable and clinically meaningful efficacy endpoints for clinical trials.

Letter of Intent Due Date: 2022-02-18

Application Due Date: 2022-04-01

Term: One - Two Years

Lysosomal Storage Diseases Fellowship

Opportunity Type: Education and Career Development

Goal: To provide extensive training in the recognition, natural history, diagnosis, testing strategies, treatment, and management of lysosomal storage diseases (LSDs) and the co-morbidities.

Sponsor: University of California, Irvine School of Medicine | Lysosomal Disease Network (LDN)

Eligibility Criteria: Candidates may include physicians or genetic counselors with an interest in metabolic disorder. Counselors may be board-certified or eligible for certification in Genetic counseling

Application Due Date: 2022-02-01

Term: One Year

Fellowships of the LDN

Opportunity Type: Education and Career Development

Goal: One-year fellowship for a post-doctoral level researcher with an interest in a career in lysosomal diseases.

Sponsor: Lysosomal Disease Network (LDN)

Eligibility Criteria: Applicants should be a recent post-doctoral professional with an interest in clinical research of lysosomal diseases This could include physicians with training in relevant disciplines, as well as pharmacists, psychologists, or other suitably qualified professionals (i.e., MD, PhD, MD-PhD, DO, PsyD, DDS, PharmD, DNP, etc.).

Application Due Date: 2021-06-15

Term: One Year

Pilot Projects of the LDN

Opportunity Type: Pilot Grants and Other Requests for Applications

Goal: These awards promote innovative research at the forefront of new therapies/technologies for lysosomal disease.

Sponsor: Lysosomal Disease Network (LDN)

Eligibility Criteria: Must be able to receive this funding through grant/contract from the University of Minnesota through an academic institution or medical center that is actively receiving other funding from the U.S. National Institutes of Health.

Application Due Date: 2021-06-15

Term: One Year