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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

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Insights from Families and Caregivers Navigating Rare Diseases

To help drive research in the areas that matter most, investigators from the RDCRN asked families and caregivers to share their experiences.

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Rare Research Report: August 2025

Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for August 2025.

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